following a visit to my local hospital almost one week ago presenting with a very swollen abdomen and legs I was rushed to a specialist hospital at 29 weeks pregnant and told following a scan that the baby had hydrops (fluid around her abdomen and lungs) and was in heart failure. In addition I was advised that there is nothing that the specialists can currently do and that my baby was unlikely to last the night. The symptoms I was an currently continue experience was diagnosed as mirror syndrome.

After three days in hospital for further monitoring and scans,each specialist has confirmed the diagnosis. INDICATION - Fetal Anomaly: Dilated heart with poor function;Hydrops, SUSPECTED DIAGNOSIS - Cardiomegaly.
I was advised that should a c section be performed at that time that the baby would not survive due to age, weight, heart and lung problems.

Although on admission I was advised that my baby would not live through the night, one week on, I am currently going for alternate day monitoring of her heart which is still going strong.

I am currently in turmoil as I am sure many of you have been and are currently going through like myself. With each further monitoring I am trying to prepare myself that she will have fallen asleep (which the doctors assure me she will) yet I can't help but feel a little hope with each visit when I hear her heart beating. I am next due at the hospital tomorrow.

I have read many posts on this site and would like to thank everyone with their information on a condition, I myself, had never heard of previously. I also wondered is there is anyone who has been in a similar situation with diagnosis and heart condition that has also been advised that there is no hope, yet has a success story or indeed further information for me.

At this time I feel so very helpless and that I am just waiting for the bad outcome that the doctors feel will inevitably happen. However, they have made me a follow up appointment for 05/01/10 should she make it until then, so can I look at this as a slight sense of hope?

I have so many questions currently unanswered but for now thought I would begin with our brief story that we are currently fighting to make a happy ending for.